Skip to Main Content

An official website of the United States government

Government Funding Lapse

Because of a lapse in government funding, the information on this website may not be up to date, transactions submitted via the website may not be processed, and the agency may not be able to respond to inquiries until appropriations are enacted. The NIH Clinical Center (the research hospital of NIH) is open. For more details about its operating status, please visit  cc.nih.gov. Updates regarding government operating status and resumption of normal operations can be found at OPM.gov.


Participants Years enrollment close-out today
Baseline Questionnaire (BQ) ~154,000 1993-2001
Dietary Questionnaire I-only (DQX) ~63,000 1993-2001
Diet History Questionnaire (DHQ) ~119,000 1998-2004
Supplemental Questionnaire (SQX) ~104,000 2006-2007
Medical Use Questionnaire (MUQ) ~60,000 2013
Brief Survey (BCQ) ~47,000 2017-2018
Cancers Active Tracking for Cancer State Cancer Registry Linkage*
Deaths Complete Mortality Data
* Cancer registry data is restricted, limited access only.

Brief Survey (BCQ)

The Brief Survey Questionnaire (BCQ) was administered between 2017 and 2018 as part of the Buccal Cell Collection effort. The questionnaire asked participants about smoking history, height, weight, weight loss, cancer history, physical activity, health history, cancer screening history, and gender-specific information.

Approximately 46,600 BCQ questionnaires were collected. The median time for BCQ completion was 20 years into the trial.

BCQ data can be obtained in the BCQ datasets.

Summary Available Data
  • Participant-reported data
  • Covers ~46,600 participants
  • Administered in 2017 and 2018
  • All questionnaires were administered after trial closeout
  • Median age of participants: 80 (IQR=77-84)
  • Forms used:
  • Form completion details
  • Smoking status
  • Height and Weight
  • Weight loss
  • Physical activity
  • Health history
  • Cancer screening history
  • Male-specific information
  • Female-specific information