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The following PLCO Ovarian dataset(s) are available for delivery on CDAS. For each dataset, a Data Dictionary that describes the data is publicly available. In order to obtain the actual data in SAS or CSV format, you must begin a data-only request. Data will be delivered once the project is approved and data transfer agreements are completed.


Datasets and Data Dictionaries

Data Dictionary
(PDF - 561.7 KB)
1. The Ovarian dataset is a comprehensive dataset that contains nearly all the PLCO study data available for ovarian cancer screening, incidence, and mortality analyses. The dataset contains one record for each of the approximately 78,000 women in the PLCO trial.
Data Dictionary
(PDF - 289.4 KB)
2. The Ovarian Screening dataset (~151,000, one record per year of screening) contains additional information from the Transvaginal Ultrasound (TVU) and CA-125 screens. This includes details of the blood draw, QA TVU results, reasons for inadequate exams, and additional findings that were not suspicious for cancer.
Data Dictionary
(PDF - 174.5 KB)
3. The Ovarian Screening Abnormalities dataset (~20,000, one record per abnormality) contains information for each abnormality found during the TVU screen. This includes the location, type, size and outline of the abnormality.
Data Dictionary
(PDF - 197.4 KB)
4. The Ovarian Diagnostic Procedures dataset (~19,000, one record per procedure) contains information about the diagnostic procedures prompted by positive ovarian cancer screen, as well as diagnostic/staging procedures associated with any ovarian cancers diagnosed during the 13 years of follow-up.
Data Dictionary
(PDF - 180.9 KB)
5. The Ovarian Medical Complications dataset (~700, one record per medical complication) contains information about the medical complications caused by diagnostic workup for ovarian cancer.
Data Dictionary
(PDF - 176.0 KB)
6. The Ovarian Treatments dataset (~1,900, one record per treatment procedure) contains specifics of the initial treatment following the diagnosis of ovarian cancer.
Data Dictionary
(PDF - 165.7 KB)
7. The Ovary Image Linkage dataset (~200, one record per image) contains identifiers necessary to link slide images with participants. This data is only provided for projects receiving H&E stained pathology images.

User Guides and Other Files

User Guides are intended to serve as a guide to using the data contained in these datasets.

For PLCO:
PLCO User Guide (PDF - 360.0 KB)

Data-Collection Forms

The following forms were used to collect data that is now available in the datasets listed above. They are provided in PDF format.

Baseline Questionnaire - Female
BQF1
BQF2
BQF3 - Scanned (1.7 MB)
Transvaginal Ultrasound Screening Exam Form
TVU1
TVU2 - Scanned (634.1 KB)
Ovarian Diagnostic Evaluation Form
DEO
DEO2
DEO3 - Scanned (3.0 MB)
Ovarian Treatment Information Form
TIO1
TIO2 - Scanned (1008.8 KB)
Annual Study Update Form
ASU - Scanned (82.2 KB)